Sunday, April 26, 2009

I can't believe I started a blog!!!

Lauren 4-11-09 Ethan 4-11-09

I always said that I would never start a blog. Not because I have anything against them, but maybe because I thought it would make me sit on the computer longer than I already do! Now I realize that I need a better way to keep everyone updated about the babies progress soooooooo... here we go!

The twins arrived on April 11, 2009 with Lauren Kate weighing 3lbs. 15oz. and Ethan Matthew weighing 3lbs. 8oz. This is huge considering I went into the hospital at 23 weeks for preterm labor and they predicted they each weighed about 1lb. It was imperative to keep them in as long as possible because Ethan suffers from a congenital heart defect called Tetralogy of Fallot. The cardiologists said the course of action would depend on how "blue" he was when he was born. Turns out, he wasn't really blue at all. This was good for the immediate future but meant more surgeries in the future to fix the collateral vessels that grew to compensate for his pulmonary stenosis. In other words, these extra veins are providing enough blood to the lungs while he is still small but will not be enough as he gets bigger. They will need to be rebuilt before he can have his "complete repair" of his heart. He was intubated when he was born but was extubated and put on a CPAP later that day.



Lauren, Mommy and Abby 4-18-09



Ethan with no tubes before his CT scan 4-17-09

Lauren was also put on a CPAP when she was born but wanted nothing to do with it and by two days old, she was officially on room air with nothing to help her breathe. The nurses said that they were tired of her taking the CPAP off so they decided to try her without it. She has been off ever since! This was when she earned the description in the NICU as "the feisty one." I actually overheard the attending doctor tell her residents "This is not a normal 32 weeker. Please don't think they will all progress this well!" Music to our ears!! By a week old, she was taking all her feeds via bottle and had no IV's or tubes. We even dress her now!

Ethan has been progressing really well too. He was breathing completely on his own as well until they had to intubate him to do a CT scan and he has been on a nasal cannula ever since. He is not on a huge amount of oxygen but we can't seem to ween him off again. The doctors were able to see quite a bit with the scan and decided that he was stable enough to wait on surgery until he gets a little bigger. Things could change in a blink but for those who have been asking, we have no idea when his first surgery will be. We hope its not for awhile so he can put some weight on those scrawny legs! He possibly could come home before he has surgery but time will tell.

Both kiddos were so stable that they moved them from the Level 3 NICU to Level 2 NICU. It was hard on me to have them moved from such specialized care to a more laid back environment. I, being the overprotective, hormonal mom, thought my teeny little ones weren't ready for the big 'ol Level 2 NICU. But they have proved me wrong yet again. They are doing very well there and have both surpassed their birth weight as of today (2 weeks old!).


Lauren the drama queen 4-21-09


Ethan's first bottle 4-22-09

Lauren chillin' in her new digs (Level II NICU) 4-23-09


Abby has done really well through this whole process but is a little scared when I am not there to pick her up from school. She is a paranoid I am going to stay in the hospital again. I don't blame her, I don't want to go back in again either! She did get to spend lots of quality time with daddy as well as her Paw Paw, Mi Mi, and Uncle David. They were angels sent by God to take care of my little munchkin while I was away. Bill needs an extra special Father's Day this year as he has earned it 100 fold this year. All I can say is that he is Super Dad.

I am finally getting my energy back as well. After 9 1/2 weeks in bed, not even sitting up for any period of time, my muscles are really weak and sore. I am building up my stamina again and healing pretty well. I am also feeling the stress of now having THREE kids to keep up with and two aren't even home yet! The Lord has really taught me to give up control through all this and let Him and others help me. Hard lesson, I'm getting there. I have no choice!

I will be sure to update here as I learn new info. Please keep us on your prayer lists as we are not even close to being out of the woods with the twins. I know Ethan's trials are just beginning. I keep saying, its hard to think anything could be wrong with our little guy. He just looks so perfect. He smiles like crazy and while I know its probably gas, I choose to believe he is smiling at me! God has been so good to us through out this so far and I know He will see us through this. Thank you to our friends and family for all your prayers, encouragement, meals, and help. You mean more to us than you can ever know.

Love,
Heather, Bill, Abby, Ethan, and Lauren

5 comments:

  1. They're beautiful, Heather! I'm so happy things are going so well, and I'll continue to keep the babies and you guys in my prayers. Congratulations!!!

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  2. These kiddos are little fighters!! I was so glad I was able to see them this weekend, they are even more precious in person!! Love you all!

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  3. They are super precious! I can't wait to meet them in person! Love you sweet friend!

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  4. Praise the Lord, Heather! This is all great news! I'll continue to pray. Lisa S

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  5. So glad to hear the good news. Your babies are in my prayers.

    Jill Reinhold Sevier

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